Feeling Lucky?

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Kiss me Im Sober.  Or am I?  Live from my micro-loft at Johns Hopkins, checking in.  As I sit here waiting for the next poke, prod, test, or scan I find myself wondering about “luck”… How lucky am I to be at one of the top hospitals in the nation for lung transplant surgery, being treated and tested by a team of Doctors especially hand picked- just for me?  As my friends spend the day drinking green beer and celebrating being Irish- my day is consumed by trying to figure out how to fit in meals, a shower, and homework into the myriad of craziness that my life has become.  I got to learn about the heart cath i will have at 8am tomorrow morning and was informed that a tube will be shoved in the artery of my leg and fished up into my heart and then another one will be inserted into the artery in my wrist and fished into the other side of my heart to look for blockages and scope out the territory.  Alli can think of is- I wish i did more cardio back when i could breathe lol.     I miss the hustle and bustle of rushing to class and dog training classes, McDonalds drive-thru, Jeopardy at 7:30pm, and my DVR.  Im trying to stay focused and keep my eye on my immediate short term goal of getting better, getting out of here, and getting on the transplant list but today is a hard day.  I feel left out, left behind, and out out of touch.  ALL of which is completely out of my control.  But is it really? NO!  I am in control, I have a BLOG, and i have ALL of YOU.   I have control over how I choose to view my circumstances.  I have control over my decision to be powerful instead of pitiful.  I have control over the things that I don’t allow to control ME- which is EVERYTHING!

I need an eyebrow wax, some polish on my toes and a haircut……     what i REALLY need is a breath of fresh air. A really DEEP breath of any kind of air.  I found a netflix documentary called Ted Talks: Life Hack.  I urge you all to take 20 min and watch this video.  It will change your life.

Until next time-  Thank you all for loving me, supporting me, and strengthening me.  Your prayers and well wishes are being felt every minute of each day and I am BLESSED to  be able to sit here from my micro-loft in the city and have all of you with me through this journey.

Published by

Lysa Dilley

Exploring Lungs For Lysa. What it was like, what happened, and what its like now.... Hang on cause its a wild ride!

7 thoughts on “Feeling Lucky?”

  1. BEST OF LUCK TOMORROW DURING YOUR HEART CATH!!!
    YOU LOOK GREAT YOUR SMILE LIGHTS UP THE WORLD.
    HANG TOUGH I KNOW YOUR IN THE WORLDS BEST HANDS AT HOPKINS.
    GOD BLESS AND MUCH LOVE

    Liked by 1 person

  2. I really enjoy reading your blog , you are truly and inspiration and you give us all a breathe of fresh air through your words and stories. I am an RN in an operating room and although we don’t do transplants we do participate in the “getting” of the donor lungs for people who really need them and from those wonderful enough to donate them. To be able to see from your perspective the process and thoughts that you go through helps me understand why we do what we do and for that I am grateful. I pray for you continuously and hope you Don’t have to wait long for that deep fresh breath of air. You have such a great attitude. Keep doing what you do and we all will keep reading and PraYing for you. ☺ sincerely, Yvette

    Liked by 1 person

  3. Apparently the procedure can be “uncomfortable” and most people would prefer sedation. I wanted sedation! I was NOT trying to feel any part of having a tube fished up through my artery in my leg all the way into my heart. No part of that procedure sounds even remotely comfortable and sedation is a lovely option when it comes to uncomfortable procedures. It was not uncomfortable at all and the only thing I felt was a tickling sensation from the instruments in my arteries probing around in my heart. It felt like a tiny pipe cleaner tickling me inside my veins but it did NOT hurt one bit. WATCHING my heart and seeing the inside of my arteries was an amazing, fascinating experience and I realized in those moments that my job sucks compared to a cardiologist hahha. YOU will make an EXCELLENT Doctor Fatima!!

    Liked by 1 person

    1. I am so very proud of you Lysa. I can’t wait for the day that you have your new lungs and you can continue life, pursuing your dreams. I love you, baby. Stay strong! 🙂

      Liked by 1 person

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