Exploring: The Story of "Lungs For Lysa"
A proactive conversation about rare disease. organ donation/transplantation, life, and living your dreams despite the circumstances
Wonderful. It made me cry.
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An inspiring story! Thank you for sharing!
KUDOS!! You are off to a great start, Lysa!!
You are such an inspiration, and I am so proud to be able to call you my friend. I have watched you go thru some of the most difficult times anyone could ever imagine. I have seen you at the highest of highs and the lowest of lows. The way you have come thru it all with such grace & determination is something we can all learn from. Never lose that smile…I love you.
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Thank you Jenn! My cry scale is as follows…. 1-10. anything sadder than a 4- I will cry. anything happier than a 7- i will cry. Your post just hit me at about a 12 on my scale. Can you hand me a tissue? 🙂
Lysa Lou…I came upon this accidentally @2days ago and I readily admit to intense feelings of shock and admiration. First, your writing ability is exceptional. It allowed me a few moments the privledge of knowing “you”…in a way I’ve felt deprived of for far too long. Your unique ability of being able to pull people to you…..allow us to entet and feel our way around your reality has been both a blessing and a treat, while at the same time sending out a signal causing me to feel alarm and horror all emeshed with a lifetime of pride and unconditional love for you. I readily admit that the scope of your illness terrifies me but how you present yourself handling a myriad of impossible possibilities awakens my spirit and I feel an abundance of that pride in the love of my life….this person who is my Lysa Lou…I love you….as always. Keep on keeping on….Aunt Nancy
Wow. This is amazing! I think this blog will be an inspiration and motivation to any reader. It will make people who live with a disease feel better about themselves and have hope and people who aren’t sick will feel just as motivated. Like a “if she can do it…why can’t I?” Lysa you’ve always been an inspiration to me and many others and more people deserve to have someone like you writing to them and for them. Keep up the great work!!!
Very well written and put together!! Cool stuff!!
I enjoyed this 4th time I ve read it. your real rock star. thanks lysa. your friend erik
very inspiring, I hope things work out and if I can help in any way please let me know !
Very inspiring – about not giving up when faced with a setback – and a big inspiration! I hope things work out! You’re a great writer, and for sure this blog will be a motivation and inspiration for everybody who reads it. – Fatima
Great post and very inspiring! Sad though, my grandma had the same disease.
she did?! Alpha1 Antitrypsin Deficiency?
Very inspirational. Thank you for sharing. I look forward to reading more.
Awesome story Lysa! We all are hoping to see you back in class soon! feel better!
Thank you for bringing Alpha-1 to the world’s attention. There are a lot of individuals (and entire families) that are struggling with this disorder AND the medical costs associated with trying to keep our Alpha as healthy as possible. My husband was diagnosed nearly 10 years ago and immediately went on weekly infusions. He has had many set backs, exacerbations, and rounds of antibiotics; however, his FEV (lung function) has stayed relatively stable. We are thankful for that. He still rides his motorcycle, is involved in many volunteer activities, and will hopefully be ordained as a Deacon in the Catholic Church in about a year and a half. He has never let his disease define him or what he will do for others. God bless you and your journey. I will be following your blog closely and adding you to my prayers.
Lysa just one word describes you INSPIRATION!
you could actually learn a few things Kevin if you could learn how to change your mind from being a glass half empty to a glass half full kinda person. You will feel better and your life will be SO much better! Its a choice though, nobody is gonna do it for ya. Best of luck to you. ~L
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